Registry Program Manager

Registry Program Manager

POSITION: FULL-TIME TERM (1 YEAR TERM, WITH POSSIBILITY OF EXTENSION)
REPORTS TO: DIRECTOR, RESEARCH & BEST PRACTICE IMPLEMENTATION
DEPARTMENT: RESEARCH & CARE

Praxis Spinal Cord Institute is a Canadian-based not-for-profit organization that leads global collaboration in spinal cord injury research, innovation and care. We advance ground-breaking ideas that can be put into practice, making lives better. We actively engage people with spinal cord injury and other world-class experts to work together to identify and solve the most urgent challenges to make exceptional improvements in the health of people with spinal cord injury. Praxis is proudly accredited by Imagine Canada and was named one of Canada’s Top 100 Charities by Maclean’s and Money Sense magazines, achieving an A+ rating.

Through a diverse workforce, Praxis is committed to excellence in research, innovation and care for people living with spinal cord injury. Praxis recognizes that a diverse workforce, comprised of individuals with an array of identities, abilities, backgrounds, cultures, skills, perspectives and experiences is vital to creativity, growth and innovation and our success in making an impact on quality of life. We support our commitment by fostering an inclusive workplace which is fair, equitable, supportive, welcoming and respectful, allowing us to continue to transform health outcomes.

JOB SUMMARY

The Registry Program Manager leads the operations of the Canadian National SCI Registry, also known as the Rick Hansen SCI Registry (RHSCIR), and identifies opportunities to align RHSCIR’s strategic direction with the priorities of Praxis’ Programs (Research & Care, Innovation), to achieve Praxis’ Vision and Mission. This role supports participating acute care hospitals and rehabilitation sites (along with community partners) with network activities and with data collection, coordinates best practice implementation activities, clinical study operations, and works closely with clinicians, researchers, people with lived experience, administrators and Praxis teams to strengthen SCI research, care and innovation across Canada.

The Registry Program Manager internally works with members of Praxis’ Research & Care, Informatics, Innovation and Evaluation and Accountability teams. Externally works across a national network of acute care hospitals and rehabilitation sites, along with community partners, clinicians, researchers, site coordinators, people with lived experience, and community organizations.

JOB ACCOUNTABILITIES

Key Responsibilities

• Lead RHSCIR planning and operations, oversee data collection and reporting, facilitate site engagement, and support the implementation of best practices at participating acute care hospitals and rehabilitation sites across Canada (including oversight of regulatory and institutional approvals).
• Coordinate strategic and program plans, priorities, timelines, risks, deliverables and sustainability planning for RHSCIR operations and improvement initiatives.
• Support high-quality data collection, reporting, and continuous improvement in collaboration with site teams and internal partners.
• Foster engagement and build strong relationships with clinicians, researchers, coordinators, people with lived experience, administrators and community partners to support collaboration and best practice implementation.
• Prepare updates, materials, and communications for RHSCIR sites, relevant committees (e.g. RHSCIR Steering Committee), Praxis team members and external partners.
• Lead budget planning, resource tracking, and contracted activities for RHSCIR.
• Manage related contracts, contractors, consultants and staff including meeting regularly and tracking deliverables.
• Support the RHSCIR Steering Committee, oversee RHSCIR-related policies and procedures, such as maintaining study documentation, data quality, training, along with the RHSCIR team.

QUALIFICATIONS

Education

• Master’s degree in health sciences, public health, health administration, research, or a related field preferred.
• Clinical research training (e.g. Good Clinical Practice, human subject research etc.)
• Program/project management education is an asset.
• An equivalent combination of education and experience will be considered.

Experience

• 5+ years of experience in program management, health research, clinical study operations, health system improvement, or a related field.
• Experience coordinating multi-partner initiatives in healthcare, research, or the not-for-profit sector.
• Experience with data-driven programs, clinical registries, clinical studies or quality improvement is an asset.
• Knowledge of spinal cord injury care, rehabilitation, clinical and/or research environments is an asset.
• Experience managing contract relationships and staff.

Skills/Behaviours

• Strong understanding of clinical study oversight and management.
• Strong program and project management, organizational, and communication skills.
• Ability to manage multiple priorities and work effectively across distributed teams and partners.
• Strong analytical, problem-solving, and relationship-building skills.
• Ability to build relationships and networks through engagement and ongoing learning.
• Commitment to professionalism, inclusion, and respectful engagement.

An equivalent combination of education, experience and skills/behaviors will be considered.

HOW TO APPLY

Interested and qualified candidates can apply by August 14, 2026. While we thank all applicants for their interest, only short-listed candidates will be contacted. For more information on Praxis, please visit www.praxisinstitute.org.

Praxis Spinal Cord Institute would like to acknowledge that the land on which we are located is on the unceded traditional territory of the Coast Salish Peoples, specifically the shared traditional territories of the Sḵwx̱wú7mesh (Squamish), səlil̓ilw̓ətaʔɬ (Tsleil-Waututh), and xʷməθkʷəy̓əm (Musqueam) First Nation